Delivery of the first CDH HOPE Totebag to the Hobbs family at Duke University Medical Center
CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program
assists families expecting babies
born with Congenital Diaphragmatic Hernia by providing them with much
needed free information and support items through a community project
in which all CDH families can participate and honor their children
while helping new families affected by Congenital Diaphragmatic Hernia.
Donated items are collected by our members, CDH families and friends
and put together into totebags by volunteers. Totebags are then
mailed to families who are expecting babies born with CDH or who have
newborns still hospitalized and battling Congenital Diaphragmatic
Hernia.
Congenital
Diaphragmatic Hernia (CDH) is a devastating birth defect that affects 1
in every 2500 babies. CDH occurs when the diaphragm fails
to fully form, allowing abdominal organs into the chest cavity and
preventing lung growth. The cause is not known.
50% of babies diagnosed with CDH do not survive. Of those
that do survive, sometimes long hospitalizations and other issues
occur. It is incredibly important for CDH families to have
accurate information of all the treatments for Congenital Diaphragmatic
Hernia so that parents can make informed decisions for the babies'
care. Items included are a
CDH Awareness Ribbon totebag, personal care items for baby and
information for the parents and family. Our CDH Baby Book
is over 200 pages of valuable CDH information and advice.
Over 100 new and expectant CDH parents join CHERUBS each
year. This project was created for them, to help them
through the first few weeks and months in dealing with Congenital
Diaphragmatic Hernia.
